Right to health: State burden - reflections about health access judicialization on rare diseases hypothesis

Authors

  • Rosana Chiavassa Universidade de São Paulo, São Paulo, SP, Brasil.
  • Guilherme Coam Universidade Presbiteriana Mackenzie. Faculdade de Direito de Itu.
  • Marcelo Lima PUC-SP, Pontifícia Universidade Católica, São Paulo, SP. Scuola di Specializzazione dell’Università Degli Studi di Camerino (UNICAM). Instituto de Direito Privado (IDP).
  • Thiago Moreira USP, Universidade de São Paulo, São Paulo, SP, Brasil. Ciências Sociais pela USP. Direito pela PUC-SP.

Keywords:

judicialization, law, public health, private health, rare diseases, "off-label" treatment

Abstract

The article aims to analyze the increasingly intense process of judicialization of health access, specifically when regarding to rare diseases, the public policies that are currently being coordinated in the health area, their constitutional anchorage and the judicial activism (lobby) applied to the health area. It will also examine the positioning of Brazilian Superior Courts, specially concerning the principle of reserve for contingencies, the health rights themselves and the private health insurances expected procedures.

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Published

2024-08-12

How to Cite

Chiavassa, R., Coam, G., Lima, M., & Moreira, T. (2024). Right to health: State burden - reflections about health access judicialization on rare diseases hypothesis. Jornal Brasileiro De Economia Da Saúde, 30–40. Retrieved from https://jbes.com.br/index.php/jbes/article/view/365

Issue

2014: Edição Especial - Doenças Raras

Section

Artigos