2014: Edição Especial - Doenças Raras

Artigos

• Right to health and the national health policy for people with rare diseases in Brazil

  Fernando Aith

  4-12

  • PDF (Português (Brasil))

• Social inclusion for people with rare diseases

  Mara Gabrilli

  13-16

  • PDF (Português (Brasil))

• Clinical research and rare diseases: the Brazilian situation

  Andressa Federhen, Filippo Vairo, Cláudia Vanzella, Ana Paula Boer, Guilherme Baldo, Roberto Giugliani

  17-23

  • PDF (Português (Brasil))

• Limitations of the methods of HTA for decision to incorporate technologies for rare diseases

  Denizar Araujo

  24-29

  • PDF (Português (Brasil))

• Right to health: State burden - reflections about health access judicialization on rare diseases hypothesis

  Rosana Chiavassa, Guilherme Coam, Marcelo Lima, Thiago Moreira

  30-40

  • PDF (Português (Brasil))

• National policy for rare diseases: challenges on implementation and Health Technology Assessment in the Brazilian Unified Health System (SUS)

  Marcela Simões, Fernanda Lessa, Maria José Fagundes

  41-47

  • PDF (Português (Brasil))